A ‘RARE’ EVENT:
MPs from four parties unite for Parliament
Hill flag-raising with the Rare Disease
Foundation to mark
International Rare Disease Day
WHEN: Thursday, February 28, 2019, 10:30 am – 12:30 pm
(Flag-raising at 10:30 followed by indoor reception)
WHERE: Flag-raising ceremony at the Centennial Flame, Parliament Hill
Reception: Wellington Building, 197 Sparks Street, Room 330
WHO: Organized by the Rare Disease Foundation
Co-hosted by:
- Tom Kmiec, Conservative MP for Calgary Shepard
- Francesco Sorbara, Liberal MP for Vaughan-Woodbridge
- Jenny Kwan, NDP MP for Vancouver East
- Elizabeth May, Leader of the Green Party and MP for Saanich-Gulf Islands
The objective of this event is to raise awareness of the challenges faced by patients with rare diseases in accessing the care and treatments they need and to encourage all stakeholders – including governments, patient groups, health professionals and industry – to help implement Canada’s Rare Disease Strategy to improve the lives of Canadians with rare diseases.
Media are welcome to cover the event and interview participants on this important topic. David Cox, Executive Director of the Rare Disease Foundation and Chris Gilmor, a parent of a child with a rare disorder and board member of the Rare Disease Foundation, are available for interviews.
For further information:
David Cox, Executive Director
Rare Disease Foundation
Cell: 604-318-0237; Email: dcox@rarediseasefoundation.org